InstaLinkLove – Week 91 #instalinklove 

By | June 16, 2018

Welcome to Week 91 of InstaLinkLove! 

  

If you haven’t joined us before in this linky before, then this is the easy-to-use linky which helps you get your Instagram posts a bit more interaction and interest.

Thank you to everyone who linked up last time and welcome to those who are back for more and those who are first-timers.

This is a really straightforward, no stress (none of us need that in our lives!), easy to use linky.

All you need to do is link up the URL from up to four of your most recent Instagram posts. We suggest most recent because this is better for interaction.

It’s just a case of finding your Instagram account on-line, clicking on the photo that you want to link up, clicking on “share post” and then copying and pasting the link into the Linky below.

The only condition is that you go over and “like” everyone else’s pictures who’ve linked up.

Here’s my favourites from last week’s linky:

  
  
  
  
 

Please remember our (very easy) rules:

*You can link up to 4 images per Instagram Account per week.

 
*Please remember to visit and “like” the other pictures linked up, prior to next week’s Linky opening.

It would also be great if you could share your post with the linky on Instagram using the hashtag #instalinklove to help grow the community.

Thanks and really looking forward to seeing what you’ve been up to on Instagram this week x 


Facebook Comments

Boxes and other bits #WOTW

By | June 16, 2018

I can’t remember the last time I summed up our week in a word, probably because our weeks since last August have been changeable and, if you’ve been reading my blogs for a while, you’ll know that routine and planning is key when living with autism.

This week though, a word has shone out!

It could have been “pedal” as I got back onto my bike on Monday, having been given clearance to at my post-op and pin removal (ouch!) appointment, last week.

I was scared at first, frightened to put either the left foot down (operated on April 2018) or the right one (August 2017) but it went okay albeit only being out for about an hour.  After weeks of being immobile, it was lovely.

  
(Both feet blooming hurt on Monday night and Tuesday though, so much so that I had to abandon plans *sad face*)

And this is where Box 1 comes in…

After my both-feet op in Oct 2016, D made me a box, it was primarily to stop Itsey (silly house cat) going anywhere near my tootsies but it also has been in use ever since my last check-up as my left foot does not like to be covered at night, at all!  D decorated it to lift my spirits after operation 1 and it’s still working after op 3.

  
  
So, afore-mentioned tootsies pop inside there at night and they’re happy! Although Itsey is now sleeping on top of the box, bless her! 

And Box 2 came via Amazon, much to Bitsey’s delight.  We buy T’s weetabix from there under the “subscribe and save” scheme as, due to his limited diet, we go through masses.

Bitsey has claimed it as her own:

  
  
If we can’t find her, she’ll be in the box.  

If I bring it indoors if it rains, she’ll pop inside it in the kitchen and then, once it’s put outside again, she’s straight in there.  

She occasionally has an argument with a cardboard corner or chases a leaf around it but then, it’s back to the box and the good thing is, she’ll get a new one every month!  

Weirdly I did joke with Hubbie a couple of weeks ago that we should get her a kennel!

D has been extremely unsettled this week, a few of the pupils have been at a residential so the timetables have been well and truly affected.  She’s had PE on days when she wouldn’t and she absolutely loves her flute lessons on Fridays, which due to changes didn’t happen (we pay for those too, grr).

This morning was particularly angst-filled, with plenty of tears from our pale-faced girl, a Costa was definitely needed, during which I marvelled at the fact I had matching shoes on after weeks of a surgical shoe and yep, worried a bit (okay, a lot) about our girl.  If those ankles look unnaturally pale, it’s because I’ve been told not to get sun on my feet at all, due to the new scars.

  
There’s also been tears at bedtime, poor D.  Next week brings sports day on Tuesday and hopefully, things will get a little bit more time-tabled after that, fingers crossed.

How’s your week been? 

Facebook Comments

InstaLinkLove – Week 90 #instalinklove 

By | June 9, 2018

Welcome to Week 90 of InstaLinkLove, I hope your week has gone well?

  
Ours has been a busy, but productive one.  The extremely long pin in my toe got taken out on Tuesday so, I’m getting used to walking with both feet flat on the floor again, very satisfying but strange after so long.

On with this week:

If you haven’t joined us before in this linky before, then this is the easy-to-use linky which helps you get your Instagram posts a bit more interaction and interest.

Thank you to everyone who linked up last time and welcome to those who are back for more and those who are first-timers.

This is a really straightforward, no stress (none of us need that in our lives!), easy to use linky.

All you need to do is link up the URL from up to four of your most recent Instagram posts. We suggest most recent because this is better for interaction.

It’s just a case of finding your Instagram account on-line, clicking on the photo that you want to link up, clicking on “share post” and then copying and pasting the link into the Linky below.

The only condition is that you go over and “like” everyone else’s pictures who’ve linked up.

Here’s my favourites from last week’s linky:

  
  
  
Please remember our (very easy) rules:

*You can link up to 4 images per Instagram Account per week.

*Please remember to visit and “like” the other pictures linked up, prior to next week’s Linky opening.

It would also be great if you could share your post with the linky on Instagram using the hashtag #instalinklove to help grow the community.

Thanks and really looking forward to seeing what you’ve been up to on Instagram this week x 


Facebook Comments

Noisy Kids with The Royal Philharmonic Orchestra 

By | June 8, 2018

There’s a few things that D and I share a love of and one of them is music.

Whether it’s listening to it (if she’s in the right mood), singing along (ditto) or playing it.  She has the opportunity to have flute lessons at her SN school and is doing very well with them.

  
When you think about it, learning an instrument is quite tricky, you have to know the position of the notes, how to read music and the timings between the notes.  All quite complicated!

D also plays in the school band and we’ve had the timetable through today for Proms Week at her school, which is always absolutely amazing, it’s a week-long event the whole school gets involved in and is both humbling and pride-inducing.

Last week, it being half term, we had the opportunity to see The Royal Philharmonic Orchestra in action at the theatre in town.  You might think of the RPO are being straight-laced, suited and stuffy, they are absolutely anything but, with sessions arranged especially for children to enjoy and interact with.
  

One of my favourite CD releases over the last few months has been Orchestrated by Midge Ure – which is a selection of his and Ultravox songs accompanied by a full Orchestra, post to follow – so to see all the components of the RPO playing together, in perfect synergy was amazing.
  
There were pieces that you’d associate with the ocean and a couple that you wouldn’t at first, but it was all made a lot of fun and absolutely the perfect way to introduce children to the wonderful sounds that a full orchestra can produce.

We weren’t asked to write this, nor did we receive free tickets, but I wanted to share as it was such a fun experience.

In our programme, it mentioned that the RPO would be back in 2019 with a superheroes and villians show, we’ll be there!

For more information on the RPO click here.

Facebook Comments

The purple band and the green chain #autism 

By | June 7, 2018

It’s been a bit of a busy week for D, two hospital trips for me have impacted on the after school routines for her and the activities at school really step up a gear after the May half term, what with Proms week, Sports Day and end of term activities rapidly looming.

In addition to the above, D has sporting opportunities coming up, these are great for team work and, in particular for D,  confidence opportunities and they give D a chance to visit venues we wouldn’t get a chance to.  One coming up is Bisham Abbey and today saw a return to the London Aquatics Centre (the Olympic pool) for a Panathlon Challenge.

She went two years ago and we got to go too, it was amazing.

However today didn’t start well for her.  She was anxious from the moment she woke up, whimpering and squeaking as opposed to talking, pale-faced and worried as the morning routine got underway.

When D gets over-anxious like this, there is absolutely no point in trying to hurry her and it’s a case of gentle encouragement with the hope that she will say what was wrong.  I knew in part though the reason, we couldn’t be there, due to my pesky annoying, painful post-op foot.

Last time we went, she travelled – and it was quite a long way from school – to the Aquatic Centre in the school bus and came home with us afterwards, so as well as us not being there, she knew she’d be travelling back with school.

These helped a bit:

  
Purple bands which I suggested we both wear, I said I’d “ping” mine if I was thinking about her and suggested she do too, I also made a quick green chain for her to wear on her wrist in the softest yarn as I said I’d be doing some crochet today.

Simple little suggestions but they really seemed to help her, along with masses of bear hugs.

Our girl came home very tired and very pale with this:

  
She hasn’t talked about her day and, from what she’s managed to  shout, the (long) journey there and back was very noisy and I guess she just wished she could have gone home with us, but ….oh yes, guilt trip time!! 

So, I’m hoping she’ll talk about her day eventually, it might take a few days, it might take a week or it might not happen at all if she’s reminded of the stressful to and  from the venue journeys.

But

As we always say to her “it’s not the winning, it’s the taking part” and we’re very proud of her for doing so.    Guilt trip time again….I just wish we’d been there to see her in such an iconic venue! 

Facebook Comments

Come and say “Hi” to BlueDais Crochet 

By | June 6, 2018

You may have noticed that I haven’t been posting as much about my crochet hobby as I used to, not so many “here’s what I’ve made” photos on my Instagram or in posts…

Well, the reason is that I’ve set up a separate Facebook page here and an Instagram account here and I’d absolutely love and appreciate it if anyone reading this fancies popping over and giving my FB page a like/follow.

I’m also going to be offering items for sale, like crowns, bookmarks, dream catchers, bunting, baby blankets or bed-sized blankets, shawls and even one-offs like this:

  
A crochet foot key ring, which I made for the surgeon who’s worked wonders on my #scarfeet.

Here’s a few pics:

A rainbow baby blanket, I loved making this! 
  

Hearts from the yarn used in the blanket above, which are going to be bunting.

Flowers to brighten up a headband for D.

  
 

And a crown! Which can either be spruced up with seed beads or left as it is, in the softest bamboo yarn.  Sizes from newborn to adult and two designs available.

  
So, keep me in mind for any teachers gifts/baby gifts/birthday gifts (various yarn brands and colours of choice available), either via a comment here or a message via the page! 

Facebook Comments

InstaLinkLove – Week 89 #instalinklove 

By | June 2, 2018

Welcome to Week 89 of InstaLinkLove, we are inching ever closer to 100, thank you for reading and joining in!

  
If you haven’t joined us before in this linky before, then this is the easy-to-use linky which helps you get your Instagram posts a bit more interaction and interest.

Thank you to everyone who linked up last time and welcome to those who are back for more and those who are first-timers.

This is a really straightforward, no stress (none of us need that in our lives!), easy to use linky.

All you need to do is link up the URL from up to four of your most recent Instagram posts. We suggest most recent because this is better for interaction.

It’s just a case of finding your Instagram account on-line, clicking on the photo that you want to link up, clicking on “share post” and then copying and pasting the link into the Linky below.

The only condition is that you go over and “like” everyone else’s pictures who’ve linked up.

Here’s my favourites from last week’s linky:
  
  
  
  

Please remember our (very easy) rules:

*You can link up to 4 images per Instagram Account per week.

*Please remember to visit and “like” the other pictures linked up, prior to next week’s Linky opening.

It would also be great if you could share your post with the linky on Instagram using the hashtag #instalinklove to help grow the community.

Thanks and really looking forward to seeing what you’ve been up to on Instagram this week x 


Facebook Comments

InstaLinkLove – Week 88 #instalinklove 

By | May 26, 2018

Welcome to Week 88 of InstaLinkLove!

  
Let’s get the GDPR bit out of the way first, my privacy and disclosure page is here, anyone else been absolutely deluded with emails this week?!?….now to business!

If you haven’t joined us before in this linky before, then this is the easy-to-use linky which helps you get your Instagram posts a bit more interaction and interest.

Thank you to everyone who linked up last time and welcome to those who are back for more and those who are first-timers.

This is a really straightforward, no stress (none of us need that in our lives!), easy to use linky.

All you need to do is link up the URL from up to four of your most recent Instagram posts. We suggest most recent because this is better for interaction.

It’s just a case of finding your Instagram account on-line, clicking on the photo that you want to link up, clicking on “share post” and then copying and pasting the link into the Linky below.

The only condition is that you go over and “like” everyone else’s pictures who’ve linked up.

Here’s my favourites from last week’s linky:

  
  
  
  

Please remember our (very easy) rules:

*You can link up to 4 images per Instagram Account per week.

*Please remember to visit and “like” the other pictures linked up, prior to next week’s Linky opening.

It would also be great if you could share your post with the linky on Instagram using the hashtag #instalinklove to help grow the community.

Thanks and really looking forward to seeing what you’ve been up to on Instagram this week x


Facebook Comments

Privacy, Disclosure and GDPR 

By | May 24, 2018

I’m sure you’ve been inundated with emails regarding the GDPR policy that comes into effect tomorrow, here’s mine!

The GDPR law has come into effect to ensure that your data isn’t being used for anything unethical, or without your consent. 

I’ve updated my Privacy and Disclosure policy here to incorporate the changes.

This is just a friendly reminder that you’ve signed up to receive my blogs via email and please be reassured that I never pass on your information, or email address to third parties and it’s not used it for any alternative reasons.  On any occasion that I may need to contact anyone, it would be undertaken via social media avenues.

If you’d like to continue to receive my blogs via email, then no action is needed on your part, if not then an “unsubscribe” click is all that is needed, but I’d love you to stay! 

  

Facebook Comments

D’s birthday and the purple Koala 

By | May 21, 2018

Our D was 14 yesterday, can you believe it?! 

It was a day in which plans which had been made were changed and, although the morning had started early and angst-filled, ended happily, thanks in part to this little Koala (or Violet as D has named her):

  

We had planned to go to the cinema, D had chosen to see “The Greatest Showman” as her birthday treat but – after a time in which she got very, very upset and anxious at the thought of the cinema being busy and the fact she said her brain felt “messed up after hard school work” – we opted for this instead:

  
    
  
A visit to “Pets At Home” as, once her main birthday present of a hutch has been built, D will be the proud owner of two little bunnies.

  
Bunnies – the real-life variety – are something she’s wanted for absolutely ages and we’ve resisted, partly because we wanted to wait until she understood that having bunnies would mean a bit of helping out but mostly because the last two years have been taken up with getting my feet sorted! 

We’d wrapped up a rabbit feeding bowl and a pack of rabbit treats, which I’d thought she’d guess instantly meant bunnies, but it took an explanation for her to understand that yes, once the (rather brill) hutch has arrived, we’ll be getting them! 

As much of the work she’s found so challenging at her SN school has involved budgeting, we had a little game in the pet shop where she’d have to mentally subtract from an amount the cost of the bunnies, hay, sawdust, food, toys etc.  She did very well and, I guess because it was a non-classroom environment, felt less pressured.

The rest of the day was taken up with D chilling after being so over-wrought earlier, birthday cake (yummy!) and her choice of tea.

But….

Her stand-out favourite from the day has been her little Koala.  A little purple rubber, free with the latest Girl Talk Art, something I picked up and wrapped up as an extra as she does like looking through the magazine and occasionally trying out the crafts inside.

Well done Violet! Like I’ve said before, expect the unexpected, eh? 

Facebook Comments