There are many types of people in this world, some have “labels”, others don’t but what we all have in common is that we have our own ways of coping/dealing with situations.
I’ve said it before, I’m not a “coooooeeee, look at me!” person, to be honest, I’d find it exhausting! The pressure of always being the focus of attention, of performing… no thanks, I’d rather be on the outside looking in, contributing when appropriate and when/if there’s a gap in conversation.
So, it’s no surprise that D is also an introvert.
This was her today, after two days absent from school, she agreed to head to the shops.
She will sit in a coffee shop with me and read her book whilst having a snack. It’s her way of coping with the environment, the contents of her book distracting her from the sounds and smells associated with the environment. There isn’t masses of conversation, she will answer politely questions but I am aware of how much she is attempting to tolerate and fit in with the environment and I don’t want to pressurise her.
It does make me smile that she’ll pack five or so paperbacks into a bag when we go out but I wouldn’t dream of restricting them, it’s far less than the two or three totes she would carry when in mainstream school, cramming them with playmobil, leaves, acorns, petals, laminated pictures and the occasional soft toy, all items that she relied on when sensory issues were looming.
Our girl will stand up in front of a packed school hall and sing, after masses and masses of practice and gentle encouragement but ask her to do something unexpected and out of routine, such as taking an item to somebody who would then attempt conversation or replying to someone who is talking and maybe using “banter” or sarcasm and she struggles, big time.
The latter happened last week during her volunteering, she headed to the nearest tree and hid, because she didn’t know how to answer and got overwhelmed.
That was an extreme example and D’s autism means that she finds it hard to “read” social situations and body language, I could see from her body language that she froze before heading for the relative safety of that tree.
On the whole, school are mindful of D’s personality but at every Parents Evening there is a task that she should join in conversations outside the classroom environment more, that when they’re out, D should start a conversation unprompted and that during “choosing time”, she shouldn’t choose a book! Which makes me reply that “choosing time should be just that! An activity of her choice!”
D has recently been given a diary by school to write down any worries and – finally – been given a daily timetable for her to refer to, all of which helps her deal with her day. In addition, she has started weekly sessions with an autism specialist at school, all aiming to get her to not bottle things up. She is extremely good at masking emotions until we’re on our way home from school and then the painful twisting and squeezing of my hands and arms will start as she lets it out. It’s something I’m used to and I’d rather she uses me as opposed to lashing out at anyone else.
I’ll know she’s got it out of her system when she starts skipping as we carry on our walk home, something which is always a relief to see.
Bearing in mind the above, I was really surprised when D told me that she’d been told (she called it “moaned at but I’ll say “encouraged”) to stop skipping and go over to the other side of the playground and talk to people during break time. Break time to D is exactly that, a break from lessons, a time to wind down (maybe skip, maybe read) and prepare herself for the rest of the day. Not be “moaned at” to join in, surely?
We have seen a major increase in D’s anxieties over the last couple of months, a combination of puberty, my sepsis episode and the pressures of school as they make increasing changes to prepare her for life beyond school, in her introverted way she’s coping…just.
Blimey, where did the year go? It’s absolutely flown by and there’s been much to learn from as we head into 2019.
I’ve been decidedly quieter on all things social-media this year – more of that later – but, in a way, that’s a positive, because I can look back now and share.
This year saw D’s dream come true, she became the proud owner of bunnies! She’s always had @autismbunny as her comforter and her drawings always feature bunnies, so we knew she’d be overjoyed to finally have her pets.
We had to wait until my foot operation was over with in April, get a decent-sized hutch and run and then…would you believe it, the day we were due to go and choose them, I ended up being treated for a cat bite in my thumb!
That long, hot summer saw D outside next to the bunnies as soon as she got home from school.
Jett and Jasper were her choices of names (after gemstones) and she’s been very good at filling their water and food and preparing their treats, leaving the “mucking-out” to us, which is fine and expected.
They’re indoors for the winter now and a funny addition to our living room as they chase each other or flop dramatically over for a sleep. The Christmas tree has been met with interest and the decorations sniffed at. Jasper does a pretty good impression of being “oven-ready” too!
A few weeks on from this saw D’s musical proms week at school, an absolutely wonderful time to really appreciate every performance and the patience of the music staff who gently encourage and enable the group and individual performances to happen.
D has weekly flute lessons at school so I was looking forward to hearing how she’d progressed – as she doesn’t like to practice at home – she definitely compartmentalises her home and school activities.
What I wasn’t prepared for (and which produced some proud tears) was a performance where she was sitting at a keyboard, she and the staff had kept from us that D had taught herself to play the keyboard! Wow, just wow!
It felt like such a decision to make, to place her into a special needs school environment (the life skills and smaller class sizes versus mainstream and maybe qualifications) but moments like that, when you see how much our girl has flourished and she enjoys it too, even being described as a “role model” for the younger pupils.
Speaking of qualifications, two opportunities presented themselves before the end of the Summer term:
One to undertake with school, a bronze Duke of Edinburgh’s award, which has proved quite tricky to set up as there are Physical, Skill and Volunteering elements to be recorded (here’s D doing her “Skill”, a weekly SN golf session):
And an Art GCSE! This is being undertaken in conjunction with another local SN school and a TA takes her to a weekly afternoon session, with a specialist teacher also visiting school. It’s something that we had never dreamt D would achieve and we have made sure that she is kept fully involved in the decision-making and understands the requirements as she does have a tendency to say “yes”, because she feels it’s expected of her (the DofE is a good example):
This year also saw a SN circus trip and a birthday party at an inflatable water park, both presenting stranger-anxieties and unfamiliar surroundings challenges:
She’s been a busy girl! Our “normal” school week also has D doing after-school multi sports, Theatre Club and band practise so, there’s never a dull moment!
The week before Christmas always brings her school’s carol concert, in which D not only played the flute but also sang with another pupil, it’s a lot of fun!
2019 will bring a practice and a “proper” DofE expedition (gulp), but that’s a few months away!
For T, 2019 will see him undertaking GCSEs (double gulp!), he took his mock exams in November/early December and he seemed to enjoy the exam environment more than a class one. This makes sense for T as he likes to go in, get something done and then move on, no deviances, no messing around.
His projected grades are good and, after having a shaky start to the school year, he’s turned things around. There were external influences (shall we say) and a combination of him being moved in classes, the teachers understanding his autism and PDA more and his determination will, hopefully, see results.
But, we don’t want to add to the pressure that a mainstream environment v autism brings, we are so proud of him whatever the outcome.
He’s still playing football in a team, playing as a team member and enjoying it. There are frustrations when the team don’t play as a team, but again, very proud of what he achieves every week.
My crochet habit turned into a good deed too, as personal poppy sales raised over £300 for the Royal British Legion:
So, 2018 has brought a lot of positives, hasn’t it?
Something I need to remember as 2019 will bring yet another foot operation and my continued journey from having had sepsis last month.
It scares me how different things could have been, it frustrates me that I am left with dehabilitating nerve pain in both the foot that needs the operation (left) and the one where the sepsis started (right foot).
It has effected my wellbeing greatly and my plan of a marathon one day to raise funds for autism/mental health charities has been discarded but… my unexpected and sudden hospital stay taught me that we can overcome change of that humongous nature, albeit with continued aftershocks (D has major separation anxieties concerning me now).
The sepsis incident also taught me that I should “do more stuff”, not put things off, whether it be reading that book I’d wanted to, tackling that crochet pattern or meeting up with someone I’d been putting off… as the “tick” says “Just Do It!”
Happy New Year from our house to yours x
When I published this picture a couple of weeks ago, I was in hospital, thinking I’d gone in with a hefty bout of Cellulitis, I didn’t realise amidst my drowsiness that it was sepsis.
The doctor who made a house call arrived within about 20 minutes after we called and he phoned an ambulance, which arrived within ten minutes, I was too drowsy to register the speed of response and it was only a few days later that Hubbie said the doctor and paramedics were saying it was sepsis.
Scary stuff, eh?
I’m very lucky. I went home after 3 days of intravenous medication, with hefty antibiotics, with the proviso that I had to seek assistance if my symptoms worsened.
Sepsis (do you know, I couldn’t bring myself to type that word for a while) is extremely serious and fast-spreading and I want to help raise awareness of it, in any way I can.
I couldn’t fault the treatment I received at the hospital, it was fast, with blood, xrays and intravenous drugs all being administered very quickly. I was moved from a&e, to acute monitoring to a bed in a ward and then finally to a side room, all within 12 hours, I remained in the side room with IV every two hours at first, diminishing to (I think) every four hours after the first day.
I am extremely grateful that I am a tad dis-organised because I had had an agreement with the GP a few years back that, if cellulitis occurs, I could treat it at home with anti-biotics. Those antibiotics were out of date, hence our phone call for a house call. If we hadn’t done that, I might not be typing this. I’m lucky.
Two weeks on and I’m not feeling 100%, I can feel a bit “scatty” and it’s like my brain wants to say a particular word, but my mouth can’t and I get tired quickly, I’m also tearful too, researching for this post made me cry, with relief.
As you can imagine, D was greatly affected by the sight of her mum heading off in an ambulance and the massive routine changes that brought. She’s had separation anxieties ever since and has found it difficult to deal with any planned changes and needs constant reassurance and cuddles.
Sepsis can occur in babies and children too, below are the signs to look out for (from the NHS website):
“Sepsis symptoms in children under five
Go straight to A&E or call 999 if your child has any of these symptoms:
- looks mottled, bluish or pale
- is very lethargic or difficult to wake
- feels abnormally cold to touch
- is breathing very fast
- has a rash that does not fade when you press it
- has a fit or convulsion
Get medical advice urgently from NHS 111
If your child has any of the symptoms listed below, is getting worse or is sicker than you’d expect (even if their temperature falls), trust your instincts and seek medical advice urgently from NHS 111.
Temperature
- temperature over 38C in babies under 3 months
- temperature over 39C in babies aged three to 6 months
- any high temperature in a child who cannot be encouraged to show interest in anything
- low temperature (below 36C – check 3 times in a 10-minute period)
Breathing
- finding it much harder to breathe than normal – looks like hard work
- making “grunting” noises with every breath
- can’t say more than a few words at once (for older children who normally talk)
- breathing that obviously “pauses”
Toilet/nappies
- not had a wee or wet nappy for 12 hours
Eating and drinking
- new baby under 1 month old with no interest in feeding
- not drinking for more than 8 hours (when awake)
- bile-stained (green), bloody or black vomit/sick
Activity and body
- soft spot on a baby’s head is bulging
- eyes look “sunken”
- child cannot be encouraged to show interest in anything
- baby is floppy
- weak, “whining” or continuous crying in a younger child
- older child who’s confused
- not responding or very irritable
- stiff neck, especially when trying to look up and down
If your child has any of these symptoms, is getting worse or is sicker than you’d expect (even if their temperature falls), trust your instincts and seek medical advice urgently from NHS 111.”
Addis have been a household name for as long as I can remember and they are the go-to brand for household items.
They have recently launched a Made For Life range and I was asked if we’d like to take a look at a couple of items.
We are mega fans of recycling as much as we can here and have a compost bin in the garden. Our bunnies enjoy vegetable and fruit scraps but anything else (previously edible) heads for the bin, via a (seen better days) container in the kitchen.
We were sent a couple of compost caddies to try (which meant the shabby container can be recycled, yippee) and are very pleased with them, the black or white alternatives complementing any kitchen decor.
“Addis compost caddy – £14.99
Sleek and discreet, this compost caddy comes complete with a removable inner bucket that can be washed in the dishwasher or by hand. Complete with carry handle, the Addis compost caddy can hold up to 2.5L of waste. ”
What I like about the caddy is its discreetness and that it has a lid, the cover can also be kept open if there’s a lot of food preparation being undertaken and that the inner bucket can be removed for washing.
The carry handle is useful for our (as we call them) “Farmer Giles’ moments”, when carrying bits over to the compost bin.
And an iron tidy:
“6 arm iron tidy £34.99 – currently £20 via amazon.co.uk
This 6 arm ironing tidy will make light work of laundry as a landing place to hang freshly laundered shirts, or clothes that have just been washed to help save time ironing by reshaping when wet and allowing creases to drop out.”
This will be used as more than an iron tidy here, I’m lucky that Hubbie doesn’t wear shirts for work, but both T and D have shirts for school uniform and it’s a handy accessory for them to be stored on hangers and kept neat. It’s also going to be very useful for use as an airer for, for example, hand-made jumpers and cardigans that need re-shaping after washing.
When not in use, it dismantles for storage.
Disclosure: we were sent these items to review, our words and opinions are our own.
I’ve mentioned before how pleased I am that D shares my love of reading, it not only serves to calm her if she’s feeling stressed (she will always have at least 3 books in her bag if we go out) but it also introduces her to imagination and provides communication prompts around the stories and the characters.
It also gives me a chance to tell D about when I’d go and stay with my grandparents in the school holidays and avidly read the books in their collection, some dating back from when my grandparents were children. Obviously there weren’t mobile phones or tablets then so it was either a walk along the beach or a read, weather dependent!
To date, D has mostly favoured books by Enid Blyton, but there comes a point when the (for example) school days series stop and I feel that she could enjoy the classical stories that I did.
I was therefore really pleased when Wordsworth Editions sent us their Collector’s Edition series of classical stories to take a lot at.
They are wonderful!
As you’ll see from the first picture above, there are 12 books in the series, all in hardback form (we both much prefer books to electronic format) and beautifully illustrated on the front, back and on the spine.
There are also illustrations in some of the stories too, my favourite character from “Alice In Wonderland” has always been the Cheshire Cat:
Part of me wants to show these to D right away, to find out what she thinks of the stories, but we’ll be popping these under the tree for her, to read at her own pace.
I can’t wait for snuggly post-Christmas afternoons, onesie time and D with the book of her choice.
More details of the books and where to buy them can be found here, what’s your favourite childhood read?
Disclosure: we were sent the books to review, our thoughts and words are our own.
There are many reasons women may want to start their family later in life.
It’s common to wait to have children for educational, professional, or personal reasons like finding the right partner. Whatever your reason may be for starting your family later, once you start trying to conceive, you may encounter complications. Rest assured, despite the concerns and myths that accompany getting pregnant at a later age, many women are healthy enough to carry and deliver a baby with the assistance of donor egg IVF.
It’s Complicated
If it’s natural, then it must be easy. That’s not always the case! It may be natural for women to become pregnant, but it’s also natural for women’s eggs to deteriorate in both quality and quantity as they age. Over time, women produce fewer eggs and the eggs they do produce tend to be of lower quality than those produced in their 20s and 30s. Women in their 40s typically enter a stage known as perimenopause, when their hormone levels that are essential to a successful pregnancy begin to decline. Although it’s becoming more frequent to see older women have children, it’s unlikely for women over 40 to get pregnant without medical help – it’s simply not discussed publicly.
Donor Egg IVF – What to Expect
Before you begin any treatment, you’ll undergo testing and receive counselling from medical professionals.
You’ll be evaluated to ensure you’re as healthy as possible for pregnancy and you’re able to meet the optimal conditions to help make future implantation successful.
You’ll be counselled to ensure you understand and are comfortable with the procedures, risks, and mental and emotional aspects of egg donor IVF. Often the greatest risk to you as a donor egg recipient is the increased likelihood of having multiple children when more than one fertilized egg is transferred to your uterus.
Another important decision you’ll have to make is the type of donor egg that best suits you.
Donor eggs are either fresh or frozen. There are a number of factors to consider between the two options. In general, frozen eggs are often significantly less expensive, more readily available, don’t require a synchronization process with the donor, and have a national donor pool to choose from.
Once you’ve decided the egg type, you can select your egg donor. You’ll want to consider if you’d like to know your donor or prefer them to remain anonymous. Then, you can refine your selection according to any additional criteria you may have based on physical and personal attributes.
Frozen egg banks have the most diverse donor databases to choose from based on eye colour, hair colour, height, education level, and personal interests.
You can expect all donors to typically be younger than 32 years of age and tested to meet fertility, infectious disease, psychological, and genetic standards.
If using fresh eggs, your next step will be to prepare for your IVF cycle by synchronizing your cycle with your donor. However, if you choose to use frozen eggs, you can begin your IVF cycle when your menstrual cycle creates the most optimal implantation environment. Eliminating the synchronization requirement can shorten the IVF timeline by several months.
Once your donor eggs are retrieved (and thawed, if frozen), they’ll be fertilized with your partner’s sperm or donor’s sperm(if you’re using a sperm donor) to create embryos. After the embryos are transferred to your uterus, you’ll take a pregnancy test to determine the results of your IVF cycle.
Control What You Can
Turning a certain age doesn’t automatically exclude you from motherhood. While you can’t control your age, you can positively influence your chances of success with donor egg IVFand by establishing healthy habits as early as possible and maintaining them throughout the entire process.
Follow your intuition and take initiative to explore your options. Control the things you can, like making informed decisions, especially when selecting your egg type and donor. Knowing what your options are will empower you to make the choice that’s best suited for you and your family.
Remember, even if you’re in your 40s, your motherhood dreams can still come true.
We all have differing ways of coping with whatever life throws at us, don’t we? Little strategies that help, whether it be something that can be dipped in and out of, or a specific.
For D, it’s her Art, it always has been, I love how, with a few strokes of a pencil, her picture takes shape and (proud mum moment here), she has started an Art GCSE course at her SN school. Her drawings are always positive too, mostly with a nature slant and incredibly detailed, below is one she made whilst I was in for my April operation:
For me, it’s my crochet habit, I’ve mentioned before how the fact that you have to concentrate on the stitches and the gentle way that something really pretty can be created from a hook and a bit of yarn really relaxes me, takes me away from the thoughts buzzing around in my head .
It produces nice results too, apart from when D requests a slug!
The past few weeks have been taken up with making crochet Poppies and selling them in D’s SN school and our local Costa.
They were sold on behalf of a crochet group I attend, all proceeds go to the Poppy Appeal and my sales totalled £301.60, which I am absolutely delighted about, that my little hobby can help in some way.
The picture above is from one of the staff at D’s school, her horse proudly wearing his poppy on his bridle, wonderful!
Once I have all the “foot stuff” rectified, I’d love to try out Yoga or Pilates but at the moment I can average 3 hours sleep some nights (due to aforementioned “stuff”) so that will be another wellbeing tool to look forward to.
One consequence of the foot operations is that I haven’t been able to attend the first two BAPs events, which are the blogging awards specifically for the SEN community – there are quite a few of us around!
With blogging in general, I can never quite see where my blog fits in, yes I’m a parent blogger but with a difference, my instagram isn’t full of happy trips out because of anxieties and as D has a set list of foods she’ll eat, we don’t do foodie pictures either.
With the BAPs, I can see where I fit in, there is a “Wellbeing” category which would suit me fine!
The link is here and whilst I can’t promise cake, I would absolutely love a nomination before tomorrow evening please!
The form will ask for my URL, which is http://AutismMumma.com and my email address, autismmumma@aol.com.
I will admit that blogging has taken a bit of a back seat through my “foot stuff” but I think I’m getting there and as Howard Jones would say “Things can only get better!”
Thanks x
When I was growing up, I guess because of a fractured childhood, all I wanted was to have my own family and a little house, somewhere I could feel secure and watch that family grow.
We had D’s Annual Review at school recently and she expressed the same wish, but added in the fact she wished to live close to the family home, it’s where she was born. Obviously with her autism and anxieties, there is a doubt as to whether that would actually happen but… who knows, certainly as her parents, Hubbie and I want to see her happy.
However, there is a shadow hanging over that request as it’s likely that she would have Polycystic Ovary Syndrome or PCOS, which tends to run in families and can inhibit a woman’s ability to conceive.
Here’s some details from the NHS website of the symptoms:
“If you experience symptoms of polycystic ovary syndrome (PCOS), they’ll usually become apparent in your late teens or early twenties.
Not all women with PCOS will have all of the symptoms, and each symptom can vary from mild to severe. Many women only experience menstrual problems and/or are unable to conceive.
Common symptoms of PCOS include:
- irregular periods or no periods at all
- difficulty getting pregnant (because of irregular ovulation or failure to ovulate)
- excessive hair growth (hirsutism) – usually on the face, chest, back or buttocks
- weight gain
- thinning hair and hair loss from the head
- oily skin or acne“
Symptoms can obviously vary from woman to woman, with some experiencing many more than others. My overriding symptom, when trying to conceive C, was the irregular periods and I was diagnosed via a blood test.
Not what a newly married woman wants to hear!
I’m lucky, I had a live birth with the assistance of Clomifene, a fertility medication that stimulates the ovaries into producing eggs, I also overhauled my lifestyle and tried to get myself into the best possible pre-pregnancy shape I could. It worked, but for many woman, there is the prospect of further, invasive treatment which may or may not produce that longed-for baby.
Another option would be to look online for hints and recommendations, naturesbest.co.uk is one such site, with pages of suggestions for living with PCOS, dealing with the many symptoms that can manifest and how to improve your wellbeing whilst coming to terms with the unexpected.
As mentioned above, I was lucky that I received treatment and had my first child. My body seemed to receive a kick-start after C was born, my periods became regular and eight years later, after telling my new Hubbie that we may not be able to have a family,
T was born naturally and at home, followed by D, 18 months later!! Two very unexpected and extremely happy accidents!!
Not the most glamorous post birth picture but our family was completed and, as we’d moved into our new home six weeks previously, D’s (planned) home birth felt very right.
Nature’s Best asked me if I had any advice for women who suspected they might have PCOS or are living with the symptoms and mine would be:
“Ask your doctor for recommendations around diet, lifestyle and supplements and make sure you are taken seriously. PCOS was hereditary in my case so I shall have to discuss any implications with my daughter if ever she plans a family.
Join online groups and support forums where you can share your hopes and fears, knowing that someone else has the same condition can really help.”
Disclosed: this is a collaborative post
I know I haven’t blogged much about school life for D and T recently but something said at D’s parents evening at her SN school last week has stuck with me.
Our girl is doing okay, more than okay at the moment, she’s started a GCSE course (we are so proud) in a subject which she enjoys (more of that in another post) and is coping – on the whole – with the challenges this new school year has brought.
D is kind and polite in school, she will happily say “Good Morning” as she goes in after our walk and has been described as a “role model” by her Head Teacher, which is wonderful! She is most definitely in the right setting for her.
Monday’s though, present a challenge as the curriculum has a “carousel”, which according to D means they go into different classes and it’s all a bit unexpected. She doesn’t look forward to Mondays and my hand is always gripped soooooooo tight on the walk but it’s part of preparing her for beyond school, I guess.
Back to the parents evening, it was all going really well until we came to this point:
This was raised as an issue, as during “choosing time” (which means they can CHOOSE what they’d like to do), D prefers to read a book and not socialise.
They also said that they would like D not to read during “Choosing Time” but talk to her classmates.
Well, apart from the fact that D has chosen to read and enjoys reading, it calms her and I don’t feel anyone should be discouraged from reading, there is the very obvious point that why should she be forced to make conversation when she’s meant to be self-regulating?
What is wrong with being quiet? She’s not a “hello, I’m here!” person, nor am I but, she will sing on stage after gentle encouragement and preparation.
Why be forced outside her comfort zone and start a conversation (and they didn’t have an answer for this) when it is very likely that any response to her questions would be “closed” answers? (her classmates are all SN too)
I know she has to be prepared for life beyond school but FGS if she is in a period of “choosing time” and she chooses to spend that time reading and self-regulating, let her!!
Today, being Tuesday, was crochet group for me. I asked D if we could go and she answered politely whenever spoken to. She was the lovely polite young teen that she is, when she wanted to, she choose to sit and read and that was fine by me.
It meant that she could tolerate being in a library where there were quite a few crying children.
It meant she tolerated the bus journey home with various smells that she very quickly picked up on, there was no way I was going to force her to start conversations if it meant she wasn’t comfortable.
So, just what is wrong with choosing to be quiet? Wouldn’t life be boring and really quite exhausting if we were all extrovert?
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