10 things you don’t know about X #SEND30DayChallenge 

By | August 21, 2017

The second day’s blog prompt is above.  I was originally going to write this post about T and D (and did draft something which I wasn’t happy with, reading it back earlier) but I’ve chosen to re-blog a post from ABC news, around the various myths surrounding autism.

I don’t normally cut and paste and all credit to ABC News but – having had my op today, it’s easier (albeit a bit lazy) for me.  It’s also a very good read for a bit of awareness.

“As the number of Americans diagnosed with autism spectrum disorders climbs, so, too, does the number of questions surrounding this disorder. Namely, what is autism, and what is causing a rise in autism diagnoses among adults and children nationwide?

Amid these questions, television shows and magazines feature a barrage of stories and imagery — families rallying for and against vaccines, debates between medical experts pointing to both genetic and environmental causes, and images of individuals diagnosed with autism who struggle to speak and function independently, while others can interact with others and are able to hold jobs. For many, these competing messages may make this already complex condition even more confusing.

Fortunately, doctors and researchers are learning more about the causes and characteristics of autism.

The following are answers to common myths, that may help us better recognize the range of symptoms we call autism spectrum disorders.

Myth: Autism is an emotional or mental health disorder.

While physical or social behaviors of individuals with autism may suggest that they have a psychological disorder, autism is actually a biological illness that affects the brain’s growth and development.

“In the case of autism, the parts of the brain that are most affected seem to impact three areas of functioning,” said Michael Alessandri, executive director of the University of Miami’s Center for Autism and Related Disabilities. “Social behavior, communication and restricted and repetitive rituals and routines are ways that the child or the adult with autism interact with the environment.”
Although autism is now understood to be a neurodevelopmental disorder, Alessandri, an expert for ABCNews.com’s OnCall+ Autism section, said autism can still be considered a complex disorder because its range of symptoms is so diverse.

“Scientists and clinicians now understand that autism is not a singular entity, but rather, a variety of syndromes that … create the autism spectrum disorders,” said Alessandri.

Myth: There is an autism epidemic.

The word “epidemic” often implies a sudden burst in the number of individuals within a fixed time who have, in this case, autism.

Although the CDC reports that one out of 150 children born have an autism spectrum disorder, some experts are quick to question whether a surge in autism cases is actually occurring. Some are more likely to link the upshot of numbers to the combination of a broader definition of autism, a wider spectrum, and an earlier diagnosis.

“The condition has not become more widespread, but there is more diagnosis of autism,” said Dr. Bob Marion, director of Children’s Evaluation and Rehabilitation Center at Albert Einstein College of Medicine in New York.

Sheila Wagner, assistant director of the Autism Center at Emory University in Atlanta, added that more awareness of symptoms has allowed more people to identify individuals who have autism.

“There’s a lot of media exposure to autism, in television and movies,” said Wagner. “This has made [autism] more recognizable in the lay population.”

Myth: Autism can be cured.

Some parents may allude to a certain diet, medicine, or set of behavioral treatments that have cured their autistic children, where other parents may try the same mode of treatment and see no results. While there are treatments created to improve an autistic child’s ability, there is no known cure for autism.

“We do know that with early intervention with younger children and Applied Behavioral Analysis, we can improve a child’s functioning,” said Marion.

Applied Behavior Analysis, or ABA, is one form of therapy for newly diagnosed children. It includes repeating behavioral activities to improve a child’s social and physical functions.

According to Marion, there is no blanket treatment for autism, and it is up to the individual’s doctor to assess what treatment will offer the best benefit for each autistic child.

In some cases, Marion said, behaviors, including eye contact, interaction with others and development of language skills, will significantly improve — but the underlying biological disorder will not change.

“And that is definitely not a cure,” he said.

Myth: Autism is the result of cold and unemotional parents.

In the 1940s, Austrian doctor Bruno Bettelheim theorized that autism was a result of parents, especially mothers, who did not love their children. Children in such situations would withdraw and become autistic, Bettelheim believed.

However, researchers have thawed the “refrigerator mother” theory. According to medical experts, a child’s autism diagnosis has nothing to do with how the child is raised.

“We don’t know if there are any things that a parent can do or not do, conclusively, will determine whether their child gets autism or not,” said Dr. Daniel Geshwind, director of UCLA’s neurogenetics program and center for autism research. “Most of the evidence right now points to there being a very strong genetic predisposition in most cases of autism, but not all.”

Myth: Individuals with autism always have hidden or exceptional talents.

Stephen Wiltshire, 34, is best known as the human camera. He can replicate architectural designs and landscapes down to each blade of grass — even if he is only given one opportunity to observe the area he is drawing. Wiltshire has reproduced panoramic scenes of Tokyo, Rome and London by memory after one short helicopter ride over each of the cities.

Wiltshire is an autistic savant. That is, he has extraordinary cognitive skills that allow him to recall details of designs, numbers and measurements that are normally considered too difficult to remember.

The concept of an autistic individual as a savant may have been popularized by Dustin Hoffman’s character in the movie “Rain Man.”

But while Marion acknowledges that there is a minority group of individuals with autism who have unusual islets of skills, savants are an unrealistic portrayal of the majority of individuals on the spectrum. He said most do not have talents or skills that distinguish themselves by extraordinary talents.

“There are strengths and weaknesses in every child,” said Marion. “It’s important for every child with autism to have a multidisciplinary evaluation by health professionals who have experience in assessing a child’s skills and deficits, to come up with an educational plan that will benefit the child the most.”

Myth: Repetitive or ritualistic behaviors should be stopped.

One of the classic indicators of autism is repetitive and ritualistic behaviors, according to the Diagnostic and Statistical Manual of Mental Disorders (DSM IV), a physician’s tool to diagnose autism.

While these behaviors — which can include hand flapping, banging on walls or rocking back and forth — may seem odd, they do have a purpose: they can be calming; they can feel good; and they may help the individual communicate with others, said Wagner.

Repetitive behaviors may only pose a problem if they begin interfering in family life or if they prevent those with autism from functioning independently, Wagner added.

However, according to Dr. Pauline Filipek, associate professor of pediatrics and neurology at the University of California, Irvine, a child may learn to outgrow repetitive behaviors.

“Often, as an individual gets older, they learn that such behaviors make them stand out in society, and they learn to miniaturize those behaviors,” said Filipek.

Myth: Individuals with autism are unable to build social relationships.

“This is a generalization and needs to be individualized because the spectrum is so wide,” said Marion.

In short, social relationships are possible for some individuals on the autism spectrum, but not for others on the most severe end of the spectrum, Marion said.

The DSM IV, which includes diagnosing guidelines for autism, lists “impairment in social interaction” as one indication that an individual can have an autism spectrum disorder. But not every child on the autism spectrum will have the same degree of difficulty connecting with others.

“At the most severe end of the spectrum, yes, that’s true,” said Marion. “But there is a multitude of children who have friends, and even some who do have close relationships.”

Myth: Autistic individuals are a danger to society.

“It is a disservice to think that all people with autism are dangerous,” said Wagner.

The idea rises from numerous news stories of individuals diagnosed with Asperger’s syndrome, a high form of autism, who have been accused of burglary and, at times, murder.

However, if you look at the entire population of people on the autism spectrum, the number of people involved in crime is small, said Wagner. If someone with autism were to act out, it may be due to frustration or perhaps physical or emotional overstimulation, not necessarily malice, she said.

Credits to: Lara Salahi and Radha Chitale, ABC News Medical Unit 

Facebook Comments

Leave Your Comment

Your email will not be published or shared. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>

CommentLuv badge