Minus Two – Mon 10th Oct 2016

By | October 10, 2016

So much of our life involves pre-planning, thinking ahead, trying to solve potential issues before they arise.   It’s the way we roll here, there are times when I think it would be nice to just go and be impromptu but that isn’t how life with autism works.

We’re used to it.  You’d hope that “professionals” who deal with SEN issues would be too.


It’s Monday, I have my op in TWO days and D’s home-school transport still isn’t sorted, in fact I think we only received a certain email today because I chased it.

The long and the short of it is, that, we have transport from a bus stop to the end of December but it’s not what was requested and they haven’t taken into account the reasoning behind this, that I wouldn’t be able to walk with her, that our nearest bus stop is five minutes walk away, that D CANNOT walk that by herself and that even if she could, her lack of potential dangers mean that it just wouldn’t work.

I’ve been asked today – when I explained, again – that my surgery is Wednesday so it has to be sorted tomorrow “what time is your surgery, when can we call?”  They’ve had all the information for ages and it’s only when I’m on the verge of tears trying to explain how flipping stressful this is, that anyone actually seems to understand.

I know “a job is a job” but what’s happened to actually reading papers, actually listening to a parent and allowing   for an individual circumstance.

At a time when I should be calm, I’m stressed and it really shouldn’t be like this, should it?

Grrr!  And poor D heard the phone call so she’s been mega mega anxious.
It’s frustrating because we had a lovely sunny walk home, with cuddles and a very acrobatic cat – click here for a short video.

Tomorrow is another day, let’s hope it brings some news.

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