The day before the day before Mon 30th Dec 2013

By | December 30, 2013

It’s the day before the end of the year, always a chance to contemplate, look back and move forwards.

I guess that’s what I’ve been doing inwardly today, wondering what were our highs and lows of 2013, thinking about our aspirations for 2014 and how to put them into a post.

In the meantime, it’s been another snuggly day for D. She has been happiest receiving her tight cuddles and cuddled up in a pink cat onesie, it’s fab, it even has a tail (albeit one attached by Velcro, which frustrated her when it kept coming off).


Now that Christmas is over, both children’s thoughts are turning to school and their return next week. Unfortunately they are not back on the same day, I’m not saying that from a “poor me, I need a bit of me-time” perspective, although now I think of it…but from the aspect that these random inset days always upset the proverbial apple cart. The one that doesn’t have an inset day resents the one that does.

As D returns to school the day before T, this has been causing her anguish.

Another issue for D is the fact that she has another injection due this week but – even though they have a letter from the hospital saying it needs to happen on a particular day and its ongoing frequency – the surgery are refusing to book an appointment in, saying that I have to phone up on the day.

An aspect of autism is the need to know in advance what will be happening and when, which is why visuals can be so useful. When the uncertainty is around something that will undoubtedly (there is no undoubtedly about it) cause pain and considerable distress for D, I do wonder why this isn’t taken into account. For future months, I doubt that school will be terribly wiling to accept a “well, she’s be having an injection but I can’t tell you when until I phone up, so you may see us, you may not”. This will be ongoing for at least the next two years.

Anyway..with a brain full of random thoughts, I will hope everyone has had a good day. Comments/RTs/shares as ever welcomed, thanks for reading Jx


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