Posts Tagged “autism”

The purple band and the green chain #autism 

By | June 7, 2018

It’s been a bit of a busy week for D, two hospital trips for me have impacted on the after school routines for her and the activities at school really step up a gear after the May half term, what with Proms week, Sports Day and end of term activities rapidly looming. In addition to […]

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D’s birthday and the purple Koala 

By | May 21, 2018

Our D was 14 yesterday, can you believe it?!  It was a day in which plans which had been made were changed and, although the morning had started early and angst-filled, ended happily, thanks in part to this little Koala (or Violet as D has named her):    We had planned to go to the […]

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Bubbles – Fri 4th May 2018

By | May 4, 2018

It’s been a long week for D, she’s normally extremely tired by Friday but today she was even more so. She was in tears as she left for school and according to her Home-school diary got very upset at school,  with more tears at home. She doesn’t like to say “no” to joining in with […]

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The Picture (and the meltdown) 

By | March 24, 2018

D loves to draw, it – along with looking at countless similar pictures of My Little Pony or Minecraft on google – is one of her self-calming tools. She’s always drawn and every birthday/Christmas/other occasion card she writes is accompanied by a drawing, some of which are incredibly detailed. Drawing brings her happiness but, this […]

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Snow Go 

By | March 1, 2018

Well, the “Beast from the East”/Storm Emma/snow has arrived.  There’s no denying that we haven’t been warned. The weather has been playing on our minds a bit these last few days and caused D a few anxieties. On Tuesday, she was due to take part in a panathlon at the Olympic pool in East London, […]

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When D shared her worries … 

By | February 27, 2018

I know, I’ve not been a regular blogger so far this year, let’s just blame “stuff”, shall we? But today, I just had to share an achievement by our D.  D – if you’ve read my posts previously – finds it very, very difficult to tell anyone at school if she’s worried about something. She […]

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Autistic adults have meltdowns too 

By | February 21, 2018

This is an anonymous guest post.    There is so much talk about children with autism having meltdowns these days.  There is much more awareness that a child may not be naughty, that they could be autistic and the National Autistic Society  did a recent high profile campaign highlighting the issues when children with autism […]

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Bye bye January – PDA, RBH and more 

By | February 3, 2018

I’m not disappointed to wave goodbye to January 2018, it’s been a long and really quite stressful month. A month in which we’ve had more contact with T’s secondary mainstream school than I can remember, a month in which I’ve felt both disappointed in them and then, two days ago relieved. It’s also been a […]

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An absence explained

By | January 24, 2018

I’ve been a “tad” absent from the blog lately, a combination of reasons and I can’t seem to access the WP app on my phone or the main site to report it, so this may not publish…anyway.     Life is never boring here but recently it’s scurrying along at quite a manic pace, we […]

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Listening – My #WOTW

By | January 12, 2018

We’ve experienced the pluses and minuses of Doctors listening this week, the first has made me hopeful, the second a bit despairing. Yesterday saw D’s annual check-up at the paediatric department where she was formally diagnosed with autism and related issues at age 4.5. She’s now 13 so very used to the environment of a […]

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