A Diagnosis and Delay Survey from @CerebraUK

By | October 3, 2015

Below is a message from Cerebra which I received and wanted to share.

We’ve had two experiences on going through the diagnosis experience for our children, one down the pediatric route (D) and one via CAMHS (T), one was considerably less stress-free and speedier than the other but this was probably due to the fact that T was older, verbal and we already had a diagnosis within the family.

If you have a few moments and either have or are waiting for a neurological diagnosis (UK only), it would help Cerebra if you could complete the survey.

Thanks J

Email from Cerebra:

“Dear Member,

 

Through extensive research at Cerebra we have identified that a delay in getting a diagnosis of your child’s condition can be a problem and that these delays can impact on the well-being of the child and/or his or her family. We’d like to find out more about the experiences of families in gaining a diagnosis for their child or children and we would be grateful if you could complete a short survey for us that will only take between 2-5 minutes to complete. The survey is open to parents and carers of children with a neurological condition who either have or are waiting for a diagnosis for their child and where the diagnosis is based in the UK. If you ‘fit the bill’ the please click on the following link and take part in this important survey:

 

Click here to take part in the survey
 

Your help in this piece of research will prove invaluable and will form the basis of further work that is planned with our Legal Entitlements Research Project at Cardiff Law School and as a presentation at a series of seminars in Birmingham and Cardiff run by Professor Luke Clements.

 

If you have any issues in completing the survey then please do not hesitate to contact me (Beverley) Also if you know of any other people that would be interested in doing the survey, then please feel free to share the above link.

Beverley Hitchcock 

Team Leader – Research and Education
Email: BeverleyH@cerebra.org.uk”

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