Tell EDCM your story – help campaign on the Children and Families Bill

By | March 2, 2013

I’ve received this email from EDCM (Every Disabled Child Matters) and am sharing it on the blog and website. Every response to EDCM – via a link at the bottom of the post/directly on their website – will assist them.

Tell us your story – help us campaign on the Children and Families Bill!

Dear Jeannette,

The Children and Families Bill currently in Parliament will change how children and young people with special educational needs (SEN) and disabilities are supported in England. EDCM (click here for their website) is campaigning to strengthen the Bill to ensure that it meets the needs of ALL disabled children.

We need you to help us tell the story of children and young people with SEN and disabilities who will challenge the new system or have traditionally struggled to get the support they need within the current system.

We would like you to share with us your experiences of struggling to access health and social care support for a child with a disability or health condition, or for yourself if you are a disabled young person.

What do we want you to tell us about?

We want you to tell us about the difficulties you have experienced accessing health and social care support if you are:

– A parent of a child identified as disabled between birth and 3 who struggled to get the support they needed

– A parent of a child who needs health and social care support but doesn’t have a statement of SEN

– A parent of a child who has a statement of SEN and has struggled to get the health and social care aspects delivered

– A young person over 18 who is not in full time education, employment or training but has health and social care needs

How will we use the stories you give us?

EDCM will produce a briefing using the information you give us about your experiences. We will use this to help explain to MPs and Peers why we are calling for change to the Children and Families Bill and how it should be improved. It is vital that MPs and Peers understand the impact the Bill will have on people’s real lives.

You can share your experiences by clicking here to complete the online form.

Thanks for your support,

Peter and Claire
The EDCM Team

Every Disabled Child Matters is the campaign fighting for rights and justice for every disabled child. Please sign up to support the campaign now, and ask everyone you know to do the same.

Registered Charity No. 258825. Registered in England and Wales No 952717. Registered office: National Children’s Bureau, 8 Wakley Street, London, EC1V 7QE.

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