What Autism means to me….

By | April 30, 2012

My daughter is nearly 8 years old and whilst she may look like any other child, she has autism.

This means that her speech & language skills are delayed, her social skills can be inappropriately used – for example, she will try and hug the supermarket delivery person but be very scared of entering an unfamilar room for a family function; and she has OCD (obsessive compulsive disorder) – this means strict routines without deviation and she will play with the same toy over and over again, want to watch the same DVD three times in a row etc etc.

Unfamilar situations and noises scare her. She will never be able to cross a road by herself, she may never drive a car or form a relationship that would normally lead to marriage/children.

I’d like to wrap her in bubble wrap and protect her from anything and everything that scares her but that isnt the way modern life works.

I’d like public awareness to be raised and this is one of the reasons I blog on Twitter to help those parents who have a newly diagnosed child and those who just want to chat.

20120430-123256.jpg

20120430-123302.jpg

Facebook Comments

9 Comments

Peter Stone on 30th April 2012 at 3:35 pm.

Keep going Jeannette

Reply

Claude Bouchard on 30th April 2012 at 8:20 pm.

Your courage and love for your daughter brings tears to my eyes…

Reply

Lori MacNab on 30th April 2012 at 8:53 pm.

I too have a reccently diagnosed child, a boy. He was diagnosed 2 months before his 11th birthday.
We for years chalked his indiosyncracies up to being a unique kid. We had a rough summer in 2011 and that is when we sought medical advise.

I am comforted reading your words. It lets me know our family is not alone.

Reply

walkingrunningstumbling on 30th April 2012 at 9:20 pm.

Your girl is beautiful! My 11-year-old son is on the autistic spectrum, and pretty much every day holds some kind of adventure.

Reply

AutismMumma on 3rd May 2012 at 9:38 am.

It definitely does…no two days are the same – despite that rigidity. Wouldn’t change her x

Reply

AutismMumma on 3rd May 2012 at 9:40 am.

That was a long wait for diagnosis…. You are definitely not alone, there is a great autism community on twitter. I’m always at the end of a tweet if you need a “chat” 🙂

Reply

AutismMumma on 3rd May 2012 at 9:41 am.

Thank you, Claude and thanks so much for the RT. I wouldn’t change her for anything but I will do everything to get public awareness and perceptions changed 🙂

Reply

AutismMumma on 3rd May 2012 at 9:41 am.

I will, thanks Peter. Thanks for being a brill RT-er, really appreciate it 🙂

Reply

TN on 8th May 2012 at 5:36 pm.

I think What Autism means to me…. | Autism Mumma (Jeannette) is a great blog post and you do a nice job of writing with good details. Tommy – http://www.ep2p4u.com

Reply

Leave Your Comment

Your email will not be published or shared. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>

CommentLuv badge